Wednesday, September 28, 2011

Beyond the Cure Upcoming Web Conferences

Beyond the Cure - Upcoming Web Conferences

Advocating for School Support
A Two-Part Series



Part 1: For the Parents of Childhood Cancer Survivors
Date: Tuesday, October 25, 2011
Time: 2:00-3:00 PM CDT
Presenter: Staff­ from the Kirkwood, MO School District
- Thurma Deloach, PhD – Executive Director of Special Programs
Leslie Johnson, MA – School Counselor
Julie Tadros, RN – School Nurse

Part 2: Preparing for College and the Work Force for Parents and Survivors
Date:Thursday, October 27, 2011
Time: 2:00-3:00 PM CDT
Presenters: Maria Gilb, MA Psychology, Counselor III Vocational Rehabilitation
Kit Maxwell-Weis, M.Ed., MAC Assistant Director/ADA Coordinator



To register, click here

For a list of archived conferences, click here

Monday, September 12, 2011

Childhood Cancer Video created by Cong. McCaul and Cong. Van Hollen

Congressman McCaul and Congressman Van Hollen just released the following video in recognition of Childhood Cancer Awareness Month

Childhood Cancer Awareness Month

Please note that the Creating Hope Act of 2011 press conference tentatively scheduled for 9/22 has been moved to 8:15 a.m. on 9/23 in Congressional Meeting Room South, which is one room over from the CVC Auditorium, where the Childhood Cancer Summit will be housed. It was felt that doing the press conference back to back with the Summit would generate more press interest in the bill and the event.

Sunday, September 11, 2011

2nd Annual Childhood Cancer Summit


Please join Congressman Michael McCaul and
Congressman Chris Van Hollen

On behalf of
The Congressional Childhood Cancer Caucus

2nd Annual Childhood Cancer Summit
Panel Discussion

Friday, September 23, 2011

Capitol Visitors Center (CVC) Auditorium
8:00 a.m. breakfast
9:00-10:00 a.m panel discussion


Please join us on Friday, September 23, 2011 from 9:00 to 10:00 a.m. in the CVC Auditorium, for an important panel discussion on pediatric cancer drug development, including a message from actor Dennis Quaid. A breakfast will be offered from 8:00 to 9:00 a.m.

Cancer remains the number one cause of death by disease in children, with nearly 40 children diagnosed every day. While survival rates have significantly improved for some types of pediatric cancers, 2,300 children are lost to this disease every year. Furthermore, for those who survive their grueling battle, three out of every five suffer from debilitating and life-threatening conditions as a result of their disease and treatments.

Due to the unique nature of pediatric cancers, drug research and discovery lags behind that of adults. In fact, in the past twenty years, there has been only one new drug approved to treat pediatric cancer that was not already approved for adults. At the upcoming Summit, a distinguished panel of experts will discuss barriers to progress and policies to accelerate the development of safe, effective pediatric cancer drugs.

The panelists include:


Dr. Peter Adamson
Chair, Children’s Oncology Group

Dr. Ron Portman
Development Lead, Pediatric Center of Excellence, Bristol Myers Squibb and Chair of BIO’s Pediatric Drug Development Committee
Dr. Eugenie Kleinerman
Head, Division of Pediatrics, M.D. Anderson Cancer Center

Nancy Goodman
Founder and Executive Director, Kids V Cancer




For more information about the Summit or to RSVP, please contact Andy Taylor (McCaul) at 202-225-2401 or andy.taylor@mail.house.gov.

Thursday, September 8, 2011

Parent & Kids 5+ - Join Us for Dinner & Fun Night of Yoga!

Tuesday, September 27th, 2011
6-8:30 pm
Life with Cancer Family Center
8411 Pennell Street
Fairfax, VA
RSVP Constance.connor@inova.org or dccandlelighters@gmail.com
Click to enlarge the flyer below: