Thursday, June 4, 2009

I'm Cured....Now What? A Conference for Teen and Young Adult Survivors of Childhood Cancer and their Parents



July 25, 2009
8 am - 5:00 pm
Life with Cancer Family Center
Fairfax, Virginia

I'm cured . . . . now what?

If you are a young person (16 and over) who is a survivor of childhood cancer, join us for this FREE and FUN one-day event. If you are a parent of a teen or young adult who is a survivor of childhood cancer, this conference is for you, too.



LEARN ABOUT:

Late Effects
Fertility
Stress-Busters and Complementary Therapies
Nutrition and Bone Health
Resources

• TRY
Zumba, Kickboxing, and Yoga (don’t forget your sneakers!)
Reiki and Massage

• SHARE COMMON CONCERNS
For Survivors - Sexuality, Dating and Disclosure
For Parents - Empowering and Letting Go

• BUILD YOUR OWN TREATMENT SUMMARY

• MEET NATIONALLY RECOGNIZED EXPERTS AND
SPEAKERS

Wendy Hobbie is the Coordinator of the Long-Term Follow-up Clinic for childhood cancer survivors at Children’s Hospital of Philadelphia, one of the first comprehensive follow-up clinics in the U.S. In addition to co-authoring Childhood Cancer Survivors, Wendy has published numerous articles on late effects, the role of the nurse practitioner in follow-up care, and risk taking behaviors of childhood cancer survivors. She is the editor of a textbook for professionals, Survivors of Childhood Cancer: Assessment and Management, and is a consultant, researcher, and frequent lecturer.

Nancy Keene is a nationally respected writer, advocate for children with cancer, and parent of a long term childhood cancer survivor. She has written several books including Childhood Leukemia: A Guide for Families, Friends and Caregivers; Childhood Cancer: A Parent’s Guide to Solid Tumor Cancers; Chemo, Craziness & Comfort; Working with Your Doctor; and Your Child in the Hospital. Nancy co-authored Childhood Cancer Survivors: A Practical Guide to Your Future with Wendy Hobbie, and has edited Educating the Child with Cancer and Childhood Brain and Spinal Cord Tumors.

Dr. Jill Ginsberg is Director of the Cancer Survivorship Program at Children’s Hospital of Philadelphia. She is a graduate of Cornell University Medical College, completing her pediatric residency at Johns Hopkins Hospital and hematology/oncology fellowship at CHOP. Her research includes the medical and psychosocial late effects of cancer therapy and is particularly interested in fertility preservation. Through her efforts, the Children’s Cancer Center at CHOP was the first pediatric program to be named a “Center of Excellence” by Fertile Hope.

Josh Sundquist is a Paralympics ski racer and nationally known inspirational speaker since age 10. He has been featured on CNN Heroes and in USA TODAY. At nine Josh was diagnosed with bone cancer. He underwent chemotherapy and his left leg was amputated. Josh was “cured” of the disease at age thirteen. He took up ski racing, and was named to the US Paralympics Ski Team for the 2006 Paralympics in Torino, Italy. He has been a keynote speaker at schools, Fortune 500 companies, and at the White House.

Sage Bolte is a Certified Social Work Oncology Counselor at Life with Cancer and a PhD candidate in Social Work at Catholic University in Washington, DC., researching the impact of cancer/treatments on young adult survivors’ sexual self. She is a frequent national speaker on sexuality and cancer, provides individual and family counseling, and facilitates breast cancer and partner support groups.

Dr. Rebecca Selove is a clinical psychologist at Children’s National Medical Center. She is particularly interested in the quality of life of survivors of pediatric cancers and provides evaluations and counseling in survivor follow-up clinics in DC and Fairfax. She completed her Ph.D. at Vanderbilt University, a Masters in Public Health from St. Louis University and has over two decades of experience in mental health, medical and university settings.

Nancy Sacks is a Research Coordinator and Registered Dietician with the Long Term Follow-up Clinic for childhood cancer with Children’s Hospital of Philadelphia. She co-chaired the Nutrition Sub-Committee of the Children’s Oncology Group (COG) helping to develop guidelines for nutrition support. She has participated in numerous research projects and publications in the areas of cancer nutrition, complementary alternative therapies, informed consent/compliance of adolescents with chemotherapy and is a frequent national speaker.

• NETWORK WITH OTHERS!


Please visit Life With Cancer to view the program brochure and to register.

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