Looking for Stories of Health Care Problems for Children with Cancer

Dear families,

There is a possible opportunity to address the issue of health care insurance coverage problems for our nation’s children with cancer, as well as young adult survivors of childhood cancer with the White House Administration. We are looking for compelling personal stories where health care coverage was difficult or impossible to get for your children with cancer.

These can be stories of lack of coverage for cancer drugs on treatment, lack of coverage for experimental treatment, clinical trials etc.

We also are in need of stories representing the huge issue of uninsurability of our young adult survivors of childhood cancer population. As you know too well, this can be from a combination of things – unemployability due to cognitive/chronic health issues leading to lack of access to health care coverage through an employer; long term dependency upon parents physically and emotionally but too old to be on a parent’s plan; too expensive to purchase as an individual due to previous cancer diagnosis etc.

If you have a story to share, please email Ruth Hoffman at: ruthihoffman@gmail.com and include your contact information by this Friday, August 14th. We will be collecting stories and possibly contacting a few of you about the possibility of attending a White House briefing during Sept. Childhood Cancer Awareness Month.

Thank you!