Enhancing the lives of families and children by providing education and advocacy, emotional and practical support, and most of all... HOPE....because kids can't fight cancer alone!
Sunday, December 5, 2010
Tuesday, November 16, 2010
Parent Night ~ Complementary Therapies
Families on and off treatment ~ Please join us next Tuesday! RSVP to DCCandlelighters@gmail.com or constance.connor@inova.org.
Monday, November 15, 2010
Check out Macy's Believe Site!
Check out Macy's Believe Site!
I believe... in the spirit of the season, in making wishes come true and that you're never too old to write a letter to Santa! Get in the spirit... check out Macy's Believe site today!
I believe... in the spirit of the season, in making wishes come true and that you're never too old to write a letter to Santa! Get in the spirit... check out Macy's Believe site today!
Thursday, October 28, 2010
In the News: Lighting a Candle for Cancer Patients
Check out this article about DC Candlelighters and a couple of photos from our Halloween party!
Lighting a Candle for Cancer Patients
Lighting a Candle for Cancer Patients
Tuesday, October 26, 2010
DC Candlelighters on to National StayClassy Awards!
We previously posted about the StayClassy award competition and asked you to vote for DC Candlelighters Childhood Cancer Foundation for small charity of the year. Thanks to the support of the community, DC Candlelighters WON that title, and is now competing with 7 other city winners for the national title and $10,000!
Now, for more exciting news. How cool would it be to raise $85,000 for kids with cancer??? We are asking for your support to raise $$ and awareness by voting for the following finalists who support childhood cancer - LET OUR VOICES BE HEARD!!!
To vote, visit: http://www.stayclassy.org/classy-awards/ or click the banner at the top of this page. Check the following boxes and be sure to click "Submit my Ballot"
DC Candlelighters (Small Charity - Washington, DC)
The Brad Kaminsky Brain Tumor Foundation (Charity of the Year - Washington, DC)
St. Baldrick's Foundation LA (Most Creative Fundraiser)
Bear Necessities (Social Media)
Patrick Mc Carrick (Volunteer of the Year)
UCLA Sigma Nu/Kappa Kappa Gamma (College Student/Org)
Erica Linz- Circus Couture (Most Successful Fundraiser by Ind/Group)
Towers Watson (Philanthropic Business of the Year)
Jim Brady's Bar & Restaurant (Philanthropic Small Business of the Year)
Please vote NOW, but no later than November 5th!
Now, for more exciting news. How cool would it be to raise $85,000 for kids with cancer??? We are asking for your support to raise $$ and awareness by voting for the following finalists who support childhood cancer - LET OUR VOICES BE HEARD!!!
To vote, visit: http://www.stayclassy.org/classy-awards/ or click the banner at the top of this page. Check the following boxes and be sure to click "Submit my Ballot"
DC Candlelighters (Small Charity - Washington, DC)
The Brad Kaminsky Brain Tumor Foundation (Charity of the Year - Washington, DC)
St. Baldrick's Foundation LA (Most Creative Fundraiser)
Bear Necessities (Social Media)
Patrick Mc Carrick (Volunteer of the Year)
UCLA Sigma Nu/Kappa Kappa Gamma (College Student/Org)
Erica Linz- Circus Couture (Most Successful Fundraiser by Ind/Group)
Towers Watson (Philanthropic Business of the Year)
Jim Brady's Bar & Restaurant (Philanthropic Small Business of the Year)
Please vote NOW, but no later than November 5th!
Tuesday, October 12, 2010
Saturday, October 9, 2010
Please VOTE for DC Candlelighters to Win $10K!!
DC Candlelighters has been chosen as a Top 5 Finalist in the NBC Washington StayClassy Award Small Charity of the Year category! Voting begins today and ends on October 22nd.
The prize is $10,000 in cash and in-kind services, which would enable us to help many more families. As you know, many families are struggling financially, and families with a child in treatment for cancer are especially in need. With a simple click of your finger, you can help us to win this contest!
Please vote for DC Candlelighters and share with your friends on Facebook, Twitter and email:
Vote for DC Candlelighters to win $10,000!
THANK YOU!!!
The prize is $10,000 in cash and in-kind services, which would enable us to help many more families. As you know, many families are struggling financially, and families with a child in treatment for cancer are especially in need. With a simple click of your finger, you can help us to win this contest!
Please vote for DC Candlelighters and share with your friends on Facebook, Twitter and email:
Vote for DC Candlelighters to win $10,000!
THANK YOU!!!
Thursday, October 7, 2010
Tuesday, September 28, 2010
Sunday, September 26, 2010
Cox Farms Pumpkin Patch Day POSTPONED
Due to rain, we've had to postpone the Candlelighters Family Day at the Pumpkin Patch. Please check back tomorrow for the new date.
Thursday, September 23, 2010
Free Telephone Conference ~ September 28, 2010
Cancer Treatment May Impact School: How to Convince Your Child's Teacher
Presented by Beyond the Cure
Conference time zone is Central Time
Tuesday, September 28, 2010
2 - 3 p.m. CT
Presenter: Mindy Aylward, RN, BSN, CPON.
Oncology Outreach Educator-- Pediatric Hematology/Oncology Akron Children's Hospital.
Who should participate?
The National Children’s Cancer Society has designed the web workshops for parents/guardians, nurses and social workers.
Register at Beyond the Cure
Presented by Beyond the Cure
Conference time zone is Central Time
Tuesday, September 28, 2010
2 - 3 p.m. CT
Presenter: Mindy Aylward, RN, BSN, CPON.
Oncology Outreach Educator-- Pediatric Hematology/Oncology Akron Children's Hospital.
Who should participate?
The National Children’s Cancer Society has designed the web workshops for parents/guardians, nurses and social workers.
Register at Beyond the Cure
Tuesday, September 21, 2010
Drug Protects Heart in Children Receiving Common Chemotherapy
Drug Protects Heart in Children Receiving Common Chemotherapy
Children treated with an anthracycline have more than a threefold increased risk of cardiac death 30 years after treatment compared with their untreated peers.
The drug dexrazoxane, which can protect heart tissue from the oxidative damage caused by doxorubicin and other anthracycline drugs, significantly reduced the occurrence of long-term heart damage in children undergoing treatment for high-risk acute lymphoblastic leukemia (ALL).
Children treated with an anthracycline have more than a threefold increased risk of cardiac death 30 years after treatment compared with their untreated peers.
The drug dexrazoxane, which can protect heart tissue from the oxidative damage caused by doxorubicin and other anthracycline drugs, significantly reduced the occurrence of long-term heart damage in children undergoing treatment for high-risk acute lymphoblastic leukemia (ALL).
Friday, September 17, 2010
Top Docs, Researchers Urge Congress To Step Up Childhood Cancer Fight
Top Docs, Researchers Urge Congress To Step Up Childhood Cancer Fight
"McCaul and Sestak will roll the panels' recommendations into a legislative agenda that includes:
- Incentives for drug development (S. 3697): would give pharmaceutical companies that bring a new pediatric drug to market priority review status for a more profitable drug they are developing
- Grants for specialized training to primary care physicians to better identify side effects and re-occurrence of symptoms (HR 2109)
- Greater access to clinical trials
- Greater emphasis on survivorship and impact of childhood cancer on families
- Full funding of the Caroline Pryce Walker Conquer Childhood Cancer Act (passed in 2009) to increase pediatric cancer research at the National Cancer Institute and create a pediatric cancer registry at the Centers for Disease Control
Most recently, through their efforts on the Caucus, McCaul and Sestak have helped secure $4 million in childhood cancer research funding for FY 2010.
Facts About Childhood Cancer
- Leading killer of children in the United States among diseases
- Kills more people each year ages 1-20 than asthma, diabetes, cystic fibrosis, and AIDS combined
- 35 children are diagnosed each day
- Studies and drug development specific to pediatric cancers remain underfunded
- Since 1980 only one new drug has been approved for treatment of childhood cancer, compared with 50 that have been approved for adults
- For every $6 in federal research per AIDS patient and every $1 per patient with breast cancer, a child with cancer receives only 30 cents
- 3 out of 5 survivors will suffer life-long side effects"
Source:
Congressman Michael McCaul (R-TX10)
"McCaul and Sestak will roll the panels' recommendations into a legislative agenda that includes:
- Incentives for drug development (S. 3697): would give pharmaceutical companies that bring a new pediatric drug to market priority review status for a more profitable drug they are developing
- Grants for specialized training to primary care physicians to better identify side effects and re-occurrence of symptoms (HR 2109)
- Greater access to clinical trials
- Greater emphasis on survivorship and impact of childhood cancer on families
- Full funding of the Caroline Pryce Walker Conquer Childhood Cancer Act (passed in 2009) to increase pediatric cancer research at the National Cancer Institute and create a pediatric cancer registry at the Centers for Disease Control
Most recently, through their efforts on the Caucus, McCaul and Sestak have helped secure $4 million in childhood cancer research funding for FY 2010.
Facts About Childhood Cancer
- Leading killer of children in the United States among diseases
- Kills more people each year ages 1-20 than asthma, diabetes, cystic fibrosis, and AIDS combined
- 35 children are diagnosed each day
- Studies and drug development specific to pediatric cancers remain underfunded
- Since 1980 only one new drug has been approved for treatment of childhood cancer, compared with 50 that have been approved for adults
- For every $6 in federal research per AIDS patient and every $1 per patient with breast cancer, a child with cancer receives only 30 cents
- 3 out of 5 survivors will suffer life-long side effects"
Source:
Congressman Michael McCaul (R-TX10)
Friday, September 10, 2010
President Obama Proclaims September Childhood Cancer Awareness Month
The White House
Office of the Press Secretary
For Immediate Release September 10, 2010 Presidential Proclamation--Childhood Cancer Awareness Month
- - - - - - -
BY THE PRESIDENT OF THE UNITED STATES OF AMERICA
A PROCLAMATION
Each year, thousands of children face the battle against cancer with inspiring hope and incredible bravery. When a child is diagnosed with cancer, an entire family and community are affected. The devotion of parents, grandparents, loved ones, and friends creates a treasured network of support for these courageous children. During National Childhood Cancer Awareness Month, we honor the young lives taken too soon and the survivors who face chronic health challenges, we celebrate the progress made in treatment and recovery, and we rededicate ourselves to fighting this disease so all children may have the chance to live a full and healthy life.
While survival rates for many childhood cancers have risen sharply over the past few decades, cancer is still the leading cause of death by disease for young Americans between infancy and age 15. Too many families have been touched by cancer and its consequences, and we must work together to control, and ultimately defeat, this destructive disease. I invite all Americans to visit Cancer.gov for more information and resources about the symptoms, diagnosis, and treatment of childhood cancers.
Tragically, the causes of cancer in children are largely unknown. Until these illnesses can be cured, my Administration will continue to support investments in research and treatment. The National Cancer Institute, the Federal Government's principal agency for cancer research, is supporting national and international studies examining the risk factors and possible causes of childhood cancers.
The health reforms included in the landmark Affordable Care Act advance critical protections for individuals facing cancer. Provisions in the law prohibit insurance companies from limiting or denying coverage to individuals participating in clinical trials, the cornerstone of cancer research. After recovering from cancer, children can no longer be denied insurance coverage due to a pre-existing condition. It also requires all new plans to provide preventive services without charging copayments, deductibles, or coinsurance, increasing access to regular checkups that can help detect and treat childhood cancers earlier. The Affordable Care Act eliminates annual and lifetime caps on insurance coverage and prohibits companies from dropping coverage if someone gets sick, giving patients and families the peace of mind that their insurance will cover the procedures their doctors recommend.
This month, we pay tribute to the health-care professionals, researchers, private philanthropies, social support organizations, and parent advocacy groups who work together to provide hope and help to families and find cures for childhood cancers. Together, we will carry on their work toward a future in which cancer no longer threatens the lives of our Nation's children.
NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim September 2010 as National Childhood Cancer Awareness Month. I also encourage all Americans to join me in recognizing and reaffirming our commitment to fighting childhood cancer.
IN WITNESS WHEREOF, I have hereunto set my hand this
tenth day of September, in the year of our Lord two thousand ten, and of the Independence of the United States of America the two hundred and thirty-fifth.
BARACK OBAMA
Office of the Press Secretary
For Immediate Release September 10, 2010 Presidential Proclamation--Childhood Cancer Awareness Month
- - - - - - -
BY THE PRESIDENT OF THE UNITED STATES OF AMERICA
A PROCLAMATION
Each year, thousands of children face the battle against cancer with inspiring hope and incredible bravery. When a child is diagnosed with cancer, an entire family and community are affected. The devotion of parents, grandparents, loved ones, and friends creates a treasured network of support for these courageous children. During National Childhood Cancer Awareness Month, we honor the young lives taken too soon and the survivors who face chronic health challenges, we celebrate the progress made in treatment and recovery, and we rededicate ourselves to fighting this disease so all children may have the chance to live a full and healthy life.
While survival rates for many childhood cancers have risen sharply over the past few decades, cancer is still the leading cause of death by disease for young Americans between infancy and age 15. Too many families have been touched by cancer and its consequences, and we must work together to control, and ultimately defeat, this destructive disease. I invite all Americans to visit Cancer.gov for more information and resources about the symptoms, diagnosis, and treatment of childhood cancers.
Tragically, the causes of cancer in children are largely unknown. Until these illnesses can be cured, my Administration will continue to support investments in research and treatment. The National Cancer Institute, the Federal Government's principal agency for cancer research, is supporting national and international studies examining the risk factors and possible causes of childhood cancers.
The health reforms included in the landmark Affordable Care Act advance critical protections for individuals facing cancer. Provisions in the law prohibit insurance companies from limiting or denying coverage to individuals participating in clinical trials, the cornerstone of cancer research. After recovering from cancer, children can no longer be denied insurance coverage due to a pre-existing condition. It also requires all new plans to provide preventive services without charging copayments, deductibles, or coinsurance, increasing access to regular checkups that can help detect and treat childhood cancers earlier. The Affordable Care Act eliminates annual and lifetime caps on insurance coverage and prohibits companies from dropping coverage if someone gets sick, giving patients and families the peace of mind that their insurance will cover the procedures their doctors recommend.
This month, we pay tribute to the health-care professionals, researchers, private philanthropies, social support organizations, and parent advocacy groups who work together to provide hope and help to families and find cures for childhood cancers. Together, we will carry on their work toward a future in which cancer no longer threatens the lives of our Nation's children.
NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim September 2010 as National Childhood Cancer Awareness Month. I also encourage all Americans to join me in recognizing and reaffirming our commitment to fighting childhood cancer.
IN WITNESS WHEREOF, I have hereunto set my hand this
tenth day of September, in the year of our Lord two thousand ten, and of the Independence of the United States of America the two hundred and thirty-fifth.
BARACK OBAMA
Pepsi Refresh Project ~ Fund Less Toxic Therapy for Children
This idea is currently in 7th place for a $250,000 grant!
FUND LESS TOXIC THERAPIES FOR CHILDREN WITH CANCER
Arms Wide Open Childhood Cancer Foundation
Please go and vote here (you can vote each day in September):
http://www.refresheverything.com/armswideopenchildhoodcancerfoundation
FUND LESS TOXIC THERAPIES FOR CHILDREN WITH CANCER
Arms Wide Open Childhood Cancer Foundation
Please go and vote here (you can vote each day in September):
http://www.refresheverything.com/armswideopenchildhoodcancerfoundation
Tuesday, September 7, 2010
Congressional Pediatric Cancer Caucus hosts first Childhood Cancer Summit
NEWS: The Congressional Pediatric Cancer Caucus will be
hosting its first Childhood Cancer Summit on September 16, 2010 from 9am
-10:30am in 2325 Rayburn House Office Building, Washington, DC.
In recognition of September as Childhood Cancer Awareness month, the Pediatric Cancer Caucus, co-chaired by Joe Sestak (D-PA) and Michael McCaul (R-TX), is planning a summit to educate Members of Congress and staff on issues related to childhood cancer. This briefing will provide information on a variety of topics from research, to drug development, to survivorship.
Panels of experts will be presenting the information, including Dr. Susan Weiner, Children's Cause for Cancer Advocacy's President and Founder, Cynthia Duncan, Director of Advocacy at CureSearch , Dr. Peter Adamson from Children's Oncology Group, Nancy Goodman from KIDS V CANCER, and doctors from Texas Children's Cancer Center, Children's Cancer Hospital at MD Anderson Cancer Center, Childrens Hospital of Philadelphia and Memorial Sloan Kettering.
These participants will address current legislation that promotes drug development and survivorship, as well as needed advancements in the field of childhood cancer to better treat and prevent this disease.
hosting its first Childhood Cancer Summit on September 16, 2010 from 9am
-10:30am in 2325 Rayburn House Office Building, Washington, DC.
In recognition of September as Childhood Cancer Awareness month, the Pediatric Cancer Caucus, co-chaired by Joe Sestak (D-PA) and Michael McCaul (R-TX), is planning a summit to educate Members of Congress and staff on issues related to childhood cancer. This briefing will provide information on a variety of topics from research, to drug development, to survivorship.
Panels of experts will be presenting the information, including Dr. Susan Weiner, Children's Cause for Cancer Advocacy's President and Founder, Cynthia Duncan, Director of Advocacy at CureSearch , Dr. Peter Adamson from Children's Oncology Group, Nancy Goodman from KIDS V CANCER, and doctors from Texas Children's Cancer Center, Children's Cancer Hospital at MD Anderson Cancer Center, Childrens Hospital of Philadelphia and Memorial Sloan Kettering.
These participants will address current legislation that promotes drug development and survivorship, as well as needed advancements in the field of childhood cancer to better treat and prevent this disease.
Inside NCI: A Conversation with Dr. Crystal Mackall about Pediatric Oncology
Inside NCI: A Conversation with Dr. Crystal Mackall about Pediatric Oncology
The chief of NCI's Pediatric Oncology Branch (http://pediatrics.cancer.gov/) talks about the research being done in her lab at NCI and areas of pediatric cancer research where researchers are poised to make major advances. The video was originally published in the NCI Cancer Bulletin (http://www.cancer.gov/ncicancerbulletin/) on September 7, 2010.
The chief of NCI's Pediatric Oncology Branch (http://pediatrics.cancer.gov/) talks about the research being done in her lab at NCI and areas of pediatric cancer research where researchers are poised to make major advances. The video was originally published in the NCI Cancer Bulletin (http://www.cancer.gov/ncicancerbulletin/) on September 7, 2010.
Thursday, September 2, 2010
September is Childhood Cancer Month!
Spread awareness! Thirty facts - one for each day of the month. Please share this list with your family and friends.
Don't forget to wear the Gold Ribbon in honor of Childhood Cancer Awareness Month. Visit the Candlelighters store for awareness items.
Let's make the Gold Ribbon as recognizable as the Pink Ribbon!
30 Childhood Cancer Facts
1. One in every 330 American children will be diagnosed with cancer before age 20.
2. The average high school has 2 students who are cancer patients or survivors. One in four elementary schools has a child with cancer.
3. Cancer is the leading cause of death by disease in children under the age of 15 in the US.
4. The causes of most childhood cancers are unknown. It can not be prevented.(Many adult cancers result from lifestyle factors such as smoking, diet, occupation, and other exposure to cancer-causing agents)
5. On average, 36 children in the US are diagnosed each day with cancer.
6. Childhood cancer occurs regularly, randomly and spares no ethnic group, socioeconomic class or geographic region. In the US, the incidence of cancer among adolescents and young adults is increasing at a greater rate than any other age group, except those over 65.
7. Childhood cancer research is vastly and consistently underfunded.
8. Chemotherapy was first shown to be effective in childhood cancer.
9. The discovery of the first tumor suppressor gene occurred in children with cancer.
10. The National Cancer Institute’s budget is $4.8 Billion. The total for all grants related to childhood cancer is $173 Million. That’s only 3.6% of the federal governments cancer budget. Aren’t our kids worth more than that?
11. Some types of childhood leukemia have survival rates over 90%. Some types of brain tumors have a 0% survival rate. If it’s your child, it’s either 0 or 100%. Anything else means nothing.
12. Overall, nearly 80% of children diagnosed with cancer survive. While 80% on a test is pretty good, the deaths of one out of every 5 children diagnosed is not.
13. Two-thirds of children who are cured of cancer in childhood end up with at least one long-term health problem arising from their treatment. One-third have severe complications such as mental retardation, lung damage or congestive heart failure. In all, they are four times as likely to have serious health problems as their siblings.
14. The Children’s Oncology Group/CureSearch is an NCI funded pediatric cancer research cooperative group. They treat over 90% of US kids diagnosed with cancer. St. Jude’s Research Hospital has a world class public relations dept, and they do excellent research, but they don’t treat nearly as many kids as CureSearch-COG doctors do.
15. 10,400 children are diagnosed with cancer every year. 2,000 of them die each year.
16. Become a regular blood donor. Kids in cancer treatment often need blood products.
17. Over the past 20 years, there has been an increase in the overall rate of childhood cancer.
18. Leukemias and brain tumors are the most common types of childhood cancer accounting for more than half of all diagnoses.
19. There is no “good” cancer. Never, ever say this to a parent.
20. Treatment for the most common types of leukemia goes on for over 3 years. Most adult cancer treatment is counted in months.
21. Just because a child’s hair has grown back, does not mean that treatment is over.
22. Adolescents and young adults have a higher rate of survival when treated on pediatric treatment plans compared to adult plans.
23. Cancer is not contagious.
24. Children in treatment often have lowered immune systems and can’t fight off simple germs like colds and flu. Stay away if you’re sick.
25. Childhood cancer effects the whole family. If you can, befriend a sibling-they could use the attention and support.
26. Research is the only hope for finding a cure for childhood cancer.
27. What not to say to a parent: What did you do to cause the cancer? Have you tried (fill-in-the-blank herbal cure)? I don’t know how you do it-I could never handle it. (real quotes)
28. A parent may have a smile on their face as they talk to you, but that doesn't mean they don't cry in the night, it only means that they are trying to make you comfortable so that you will keep talking to them. Families in cancer treatment become very isolated. After a while, they stop telling you how their child really is when you ask, because they learn that people want to hear “fine” and move on.
29. Send jokes to the family effected by cancer. Nobody needs to laugh more than someone hanging out on a kids cancer ward.
30. If your child is a friend of a child with cancer, encourage that friendship. Kids with cancer miss a lot of school and need friends to keep them connected.
Don't forget to wear the Gold Ribbon in honor of Childhood Cancer Awareness Month. Visit the Candlelighters store for awareness items.
Let's make the Gold Ribbon as recognizable as the Pink Ribbon!
30 Childhood Cancer Facts
1. One in every 330 American children will be diagnosed with cancer before age 20.
2. The average high school has 2 students who are cancer patients or survivors. One in four elementary schools has a child with cancer.
3. Cancer is the leading cause of death by disease in children under the age of 15 in the US.
4. The causes of most childhood cancers are unknown. It can not be prevented.(Many adult cancers result from lifestyle factors such as smoking, diet, occupation, and other exposure to cancer-causing agents)
5. On average, 36 children in the US are diagnosed each day with cancer.
6. Childhood cancer occurs regularly, randomly and spares no ethnic group, socioeconomic class or geographic region. In the US, the incidence of cancer among adolescents and young adults is increasing at a greater rate than any other age group, except those over 65.
7. Childhood cancer research is vastly and consistently underfunded.
8. Chemotherapy was first shown to be effective in childhood cancer.
9. The discovery of the first tumor suppressor gene occurred in children with cancer.
10. The National Cancer Institute’s budget is $4.8 Billion. The total for all grants related to childhood cancer is $173 Million. That’s only 3.6% of the federal governments cancer budget. Aren’t our kids worth more than that?
11. Some types of childhood leukemia have survival rates over 90%. Some types of brain tumors have a 0% survival rate. If it’s your child, it’s either 0 or 100%. Anything else means nothing.
12. Overall, nearly 80% of children diagnosed with cancer survive. While 80% on a test is pretty good, the deaths of one out of every 5 children diagnosed is not.
13. Two-thirds of children who are cured of cancer in childhood end up with at least one long-term health problem arising from their treatment. One-third have severe complications such as mental retardation, lung damage or congestive heart failure. In all, they are four times as likely to have serious health problems as their siblings.
14. The Children’s Oncology Group/CureSearch is an NCI funded pediatric cancer research cooperative group. They treat over 90% of US kids diagnosed with cancer. St. Jude’s Research Hospital has a world class public relations dept, and they do excellent research, but they don’t treat nearly as many kids as CureSearch-COG doctors do.
15. 10,400 children are diagnosed with cancer every year. 2,000 of them die each year.
16. Become a regular blood donor. Kids in cancer treatment often need blood products.
17. Over the past 20 years, there has been an increase in the overall rate of childhood cancer.
18. Leukemias and brain tumors are the most common types of childhood cancer accounting for more than half of all diagnoses.
19. There is no “good” cancer. Never, ever say this to a parent.
20. Treatment for the most common types of leukemia goes on for over 3 years. Most adult cancer treatment is counted in months.
21. Just because a child’s hair has grown back, does not mean that treatment is over.
22. Adolescents and young adults have a higher rate of survival when treated on pediatric treatment plans compared to adult plans.
23. Cancer is not contagious.
24. Children in treatment often have lowered immune systems and can’t fight off simple germs like colds and flu. Stay away if you’re sick.
25. Childhood cancer effects the whole family. If you can, befriend a sibling-they could use the attention and support.
26. Research is the only hope for finding a cure for childhood cancer.
27. What not to say to a parent: What did you do to cause the cancer? Have you tried (fill-in-the-blank herbal cure)? I don’t know how you do it-I could never handle it. (real quotes)
28. A parent may have a smile on their face as they talk to you, but that doesn't mean they don't cry in the night, it only means that they are trying to make you comfortable so that you will keep talking to them. Families in cancer treatment become very isolated. After a while, they stop telling you how their child really is when you ask, because they learn that people want to hear “fine” and move on.
29. Send jokes to the family effected by cancer. Nobody needs to laugh more than someone hanging out on a kids cancer ward.
30. If your child is a friend of a child with cancer, encourage that friendship. Kids with cancer miss a lot of school and need friends to keep them connected.
Monday, August 23, 2010
We've been nominated for a Classy Award!
Check it out -- And be sure to vote for us this Fall!
The winner of the small charity of the year in our area will win $10,000!
The winner of the small charity of the year in our area will win $10,000!
Monday, July 26, 2010
Wednesday, June 23, 2010
Childhood-cancer survivor tells tale of hope, overcoming odds - pressofAtlanticCity.com
Childhood-cancer survivor tells tale of hope, overcoming odds - pressofAtlanticCity.com
Check out Alesia Shute's book about her battle with colon cancer, diagnosed at the age of 7.
Check out Alesia Shute's book about her battle with colon cancer, diagnosed at the age of 7.
Monday, June 21, 2010
Blinatumomab - Possible New Treatment for ALL?
Micromet’s Cancer Missiles Lure Boehringer, Sanofi (Update2)
From Businessweek (June 14, 2010, 4:25 PM EDT):
"What Micromet has developed is a way to activate T-cells, the elite troops of the immune system, to attack malignancies, including a rare leukemia that strikes children. It has signed partnerships with five of Europe’s largest drug companies: Bayer AG, Sanofi-Aventis SA, AstraZeneca Plc, Merck KGaA and Boehringer Ingelheim GmbH."
...
"The disease blinatumomab is designed to treat, acute lymphocytic leukemia or ALL, isn’t common, but it is a high priority for some doctors. One reason is that two-thirds of the 5,400 new cases in the U.S. each year are children, many of whom only survive with painful chemotherapy that continues for years."
...
From Businessweek (June 14, 2010, 4:25 PM EDT):
"What Micromet has developed is a way to activate T-cells, the elite troops of the immune system, to attack malignancies, including a rare leukemia that strikes children. It has signed partnerships with five of Europe’s largest drug companies: Bayer AG, Sanofi-Aventis SA, AstraZeneca Plc, Merck KGaA and Boehringer Ingelheim GmbH."
...
"The disease blinatumomab is designed to treat, acute lymphocytic leukemia or ALL, isn’t common, but it is a high priority for some doctors. One reason is that two-thirds of the 5,400 new cases in the U.S. each year are children, many of whom only survive with painful chemotherapy that continues for years."
...
Saturday, June 19, 2010
Extreme Recess Baseball Clinic with the Washington Nationals
Dreams for Kids contacted DC Candlelighters to let our families know about Extreme Recess baseball clinic at Nationals Park! Open the flyer and related forms, and hurry...spots are limited!
Saturday, July 10th
Nationals Ball Park
Washington, DC
Join in the fun as the Washington Nationals and Dreams for Kids partner on a large scale for an Extreme Recess baseball clinic for kids with all abilities! We will be hosting 100-150 kids for a full day with the team and trained professionals. Kids will be able to practice with the players and coaches in the stadium and on the field and each participant will also be given two tickets to that evening's game for free! Lunch will also be provided for participants. There are limited spots, so call to claim your spot today.
Participant Waiver Form
Volunteer Waiver
Tuesday, June 15, 2010
Monday, June 7, 2010
Help *Transplant Grants for Kids* Pepsi Refresh Project*
With just the click of your mouse (and without spending a dime) you can help raise $100,000 to help families of children who need a bone marrow transplant!
Here's how: Pepsi has invited three NASCAR drivers to take part in a friendly competition to raise funds for their favorite charity. NASCAR champ, Jimmie Johnson, has chosen the *National Marrow Donor Program's Patient Assistance Fund* which helps families pay for food, lodging, travel, prescription co-pays and other expenses that really can mount up during transplant.
In order to win the $100,000, Jimmie needs to get the most votes online for his cause.
Here's where you come in!
Simply *click on this link* to the competition web site and vote for Jimmie Johnson's project to fund *Transplant Grants for Kids*.
There's no limit on the number of times you can vote between now and June 23rd at 6 pm EST.
Ask your family and friends to vote for Jimmie's project too. If you or a
loved one has been through a transplant, you understand just how important this financial assistance can be.
As we say in Chicago, vote early, vote often! Let's make sure Jimmie Johnson
gets the most votes, so that kids who need a transplant get the financial help that they need.
Here's how: Pepsi has invited three NASCAR drivers to take part in a friendly competition to raise funds for their favorite charity. NASCAR champ, Jimmie Johnson, has chosen the *National Marrow Donor Program's Patient Assistance Fund* which helps families pay for food, lodging, travel, prescription co-pays and other expenses that really can mount up during transplant.
In order to win the $100,000, Jimmie needs to get the most votes online for his cause.
Here's where you come in!
Simply *click on this link* to the competition web site and vote for Jimmie Johnson's project to fund *Transplant Grants for Kids*.
There's no limit on the number of times you can vote between now and June 23rd at 6 pm EST.
Ask your family and friends to vote for Jimmie's project too. If you or a
loved one has been through a transplant, you understand just how important this financial assistance can be.
As we say in Chicago, vote early, vote often! Let's make sure Jimmie Johnson
gets the most votes, so that kids who need a transplant get the financial help that they need.
Wednesday, June 2, 2010
Tuesday, May 18, 2010
The Influence Cancer May Have on My Child's Sexual Function
Free Teleconference by Beyond the Cure: The Influence Cancer May Have on My Child's Sexual Function
Date: May 26, 2010
Register Here
2 – 3 p.m. CT
Presenter: Sage Bolte, ABD, LCSW, OSW-C. Oncology counselor for Life with Cancer ® a not-for-profit organization supported by INOVA Cancer Services
This free telephone workshop is for parents and professionals. It is the second of two programs to be presented on the late effects from the treatment of childhood cancer that impact sexual function. Nurses will benefit from both of these programs obtaining information from a professional perspective and the family’s point of view.
The purpose of the teleconference is to provide information for the parents of a child diagnosed with cancer that facilitates communication with the health care team regarding the long term effects from treatment on sexual function. Nurses will identify the concerns of these families have to facilitate the education process.
This teleconference will:
• Identify side effects from the treatment of childhood cancer that affect sexual function
• Describe ways to facilitate a discussions about sensitive issues regarding infertility, sexuality and intimacy
• Identify helpful ways to introduce sensitive information and resources that are available
CONTINUING EDUCATION FOR NURSES
Goal
Nurses participating in this series of teleconferences will receive the knowledge that facilitates the necessary discussions that need to occur when the treatment of childhood cancer impacts a child’s sexual function. The goal is to establish the willingness and comfort to discuss this sensitive information that will improve their nursing practice.
Target Audience
Nurses involved in the treatment of children diagnosed with cancer.
Contact Hours
One (1) contact hour will be awarded per session for a total of two (2) for the completion of the series.
In order to receive the contact hours provided the participant must register and participate in the entire teleconference as verified by a report generated by teleconferencing service (If multiple listeners are participating at one site, a moderator should fax a sign-in sheet to 314-735-2019) and complete an evaluation within 30 days online through Survey Monkey. After 30 days the link will be removed and contact hours will no longer be awarded.
The National Children’s Cancer Society is an approved provider of continuing
nursing education by the Missouri Nurses Association, an accredited approver by
the American Nurses Credentialing Center’s Commission on Accreditation.
Date: May 26, 2010
Register Here
2 – 3 p.m. CT
Presenter: Sage Bolte, ABD, LCSW, OSW-C. Oncology counselor for Life with Cancer ® a not-for-profit organization supported by INOVA Cancer Services
This free telephone workshop is for parents and professionals. It is the second of two programs to be presented on the late effects from the treatment of childhood cancer that impact sexual function. Nurses will benefit from both of these programs obtaining information from a professional perspective and the family’s point of view.
The purpose of the teleconference is to provide information for the parents of a child diagnosed with cancer that facilitates communication with the health care team regarding the long term effects from treatment on sexual function. Nurses will identify the concerns of these families have to facilitate the education process.
This teleconference will:
• Identify side effects from the treatment of childhood cancer that affect sexual function
• Describe ways to facilitate a discussions about sensitive issues regarding infertility, sexuality and intimacy
• Identify helpful ways to introduce sensitive information and resources that are available
CONTINUING EDUCATION FOR NURSES
Goal
Nurses participating in this series of teleconferences will receive the knowledge that facilitates the necessary discussions that need to occur when the treatment of childhood cancer impacts a child’s sexual function. The goal is to establish the willingness and comfort to discuss this sensitive information that will improve their nursing practice.
Target Audience
Nurses involved in the treatment of children diagnosed with cancer.
Contact Hours
One (1) contact hour will be awarded per session for a total of two (2) for the completion of the series.
In order to receive the contact hours provided the participant must register and participate in the entire teleconference as verified by a report generated by teleconferencing service (If multiple listeners are participating at one site, a moderator should fax a sign-in sheet to 314-735-2019) and complete an evaluation within 30 days online through Survey Monkey. After 30 days the link will be removed and contact hours will no longer be awarded.
The National Children’s Cancer Society is an approved provider of continuing
nursing education by the Missouri Nurses Association, an accredited approver by
the American Nurses Credentialing Center’s Commission on Accreditation.
May 25th Parent Night ~ Managing Side Effects
Please join us next Tuesday evening for Managing your Child's Side Effects during Treatment. In addition to this program, a pizza dinner and simultaneous children's program will be offered. Life With Cancer, Leukemia & Lymphoma Society and DC Candlelighters cosponsor this program. Click on the picture above for more information.
Our next Candlelighter's/Life with Cancer Parent Night will be Tuesday, June 22nd, from 6 - 8:30 pm.
All program offerings will be held at the Life with Cancer Family Center at 8411 Pennell Street, Fairfax, VA 22031
Other Upcoming Life With Cancer Dates:
For Children ages 5 - 12 Off Treatment: We are continuing to offer an "Off Therapy" monthly support group for those children who have completed therapy. The group meets on the 3rd Tuesday of every month from 4:15 - 5:30 pm. Call Jenny Eckert, LCSW, at 703-698-2536 or email jennifer.eckert@inova.org for more information.
For Kids and Sibs: "Kids with Cancer and Super Sibling Support Day" for children ages 5 - 12, Monday, June 28th, from 10 - 4 pm. Please register with Jenny Eckert, LCSW, at 703-698-2536 or email jennifer.eckert@inova.org.
For Teens: "Movie/Game Night for Teens", 13-18, on Friday, June 25th. Fun filled night with Wii, foosball, pool, movies, etc. from 7 - 9 pm. Please RSVP to Jenny Eckert, LCSW, at 703-698-2536 or jennifer.eckert@inova.org.
For Teens, 17 and over and Young Adult Survivors of Childhood Cancer: "Save the Date" for Tuesday, July 27th, from 6:30 - 9 pm, for dinner and a speaker (TBA), plus a chance to win several $1000 college scholarships offered by Growing Hope. Contact Connie Connor at 703-531-1515 or constance.connor@inova.org for more information.
Thursday, April 22, 2010
Mother's Day ~ 7th Annual Angel Kisses 5K Run/2K Fun Run and Walk
Come join us for the 7th Annual Angel Kisses 5K Run/2K Fun Run and Walk on Sunday, May 9th @ 8:00 am.
This race was created in honor of a special little boy, Jeffrey Virostek, who lost his brave battle with leukemia on September 25, 2003, at the age of 4 1/2. Angel Kisses is a fund-raising 5K/2K Race to benefit the Jeffrey Virostek Fund, a component fund of the Northern Virginia Community Foundation. DC Candlelighter's financial assistance fund is made possible by the generosity of the Jeffrey Virostek Fund.
To participate, donate, or volunteer for this event, please visit: http://www.angelkisses-5k.org/default.htm
Sunday, April 18, 2010
Saturday, April 10, 2010
Abby Miller Rocks for Children's Cancer this Sunday!
This Sunday 75 DC-area musicians join Abby Miller in her campaign to Rock Children's Cancer
Herndon, VA
On several weekends over the past two years, 12-year-old Abby Miller from Sterling, VA has performed outside of strip malls and train stations to raise money for Taylor Love, a 4-year-old from Ashburn who is battling neuroblastoma. Abby gets a helping hand as 75 local musicians from 15 bands join her this Sunday, April 11th for "Let's Rock Children's Cancer." This is an all-ages benefit concert that will run from 2 PM until 10 PM at Ned Devine's of Herndon. All proceeds will go to the Band of Parents Foundation which is raising money to treat neuroblastoma.
(Note: this is an event that is 100% music. Mostly classic rock. There will not be crafts and games like there were at the Candlelighters' tree lighting ceremony so this is mostly an event that will appeal to adults and kids over 12.)
Admission is $10 for adults and $5 for youth under 18. Tickets are available at the door or at www.studiorocknova.com.
Joining Abby will be: Margot MacDonald Band, Patty Reese, Iris Divine, Dr. FU, Bill Mulroney and Second Wind Bandits, StudioRock Musicians, Lightspeed Rescue, Rain Maxwell, Sobriquet, Katherine Thorsey, Mercury in Summer, Indecision, Full Tilt and Hathaway Brown. The MC is "Little John" Caniford from JJDL Radio.
The event is sponsored by StudioRock of Northern Virginia, a performance-base rock music school in Potomac Falls, VA. Approximately 30 students from the school will perform during the concert.
Taylor Love was diagnosed three years ago with Stage IV, High Risk Neuroblastoma. After undergoing countless procedures and operations, she is currently in remission but there is a 90% chance her cancer will return. Her doctors at Sloan Kettering Memorial Cancer Center in New York City have developed an antibody that they believe is 100 times more effective than any previous treatment. They need $800,000 in order to move forward with this treatment. All proceeds for this fundraiser will fund this treatment.
Ned Devine's is located at 2465 Centreville Rd, Herndon, VA 20171
Contact: Mike Gillette: 703-407-6520 or mikegillette@hotmail.com
Herndon, VA
On several weekends over the past two years, 12-year-old Abby Miller from Sterling, VA has performed outside of strip malls and train stations to raise money for Taylor Love, a 4-year-old from Ashburn who is battling neuroblastoma. Abby gets a helping hand as 75 local musicians from 15 bands join her this Sunday, April 11th for "Let's Rock Children's Cancer." This is an all-ages benefit concert that will run from 2 PM until 10 PM at Ned Devine's of Herndon. All proceeds will go to the Band of Parents Foundation which is raising money to treat neuroblastoma.
(Note: this is an event that is 100% music. Mostly classic rock. There will not be crafts and games like there were at the Candlelighters' tree lighting ceremony so this is mostly an event that will appeal to adults and kids over 12.)
Admission is $10 for adults and $5 for youth under 18. Tickets are available at the door or at www.studiorocknova.com.
Joining Abby will be: Margot MacDonald Band, Patty Reese, Iris Divine, Dr. FU, Bill Mulroney and Second Wind Bandits, StudioRock Musicians, Lightspeed Rescue, Rain Maxwell, Sobriquet, Katherine Thorsey, Mercury in Summer, Indecision, Full Tilt and Hathaway Brown. The MC is "Little John" Caniford from JJDL Radio.
The event is sponsored by StudioRock of Northern Virginia, a performance-base rock music school in Potomac Falls, VA. Approximately 30 students from the school will perform during the concert.
Taylor Love was diagnosed three years ago with Stage IV, High Risk Neuroblastoma. After undergoing countless procedures and operations, she is currently in remission but there is a 90% chance her cancer will return. Her doctors at Sloan Kettering Memorial Cancer Center in New York City have developed an antibody that they believe is 100 times more effective than any previous treatment. They need $800,000 in order to move forward with this treatment. All proceeds for this fundraiser will fund this treatment.
Ned Devine's is located at 2465 Centreville Rd, Herndon, VA 20171
Contact: Mike Gillette: 703-407-6520 or mikegillette@hotmail.com
Monday, March 29, 2010
Jel Sert Click for a Cure!
For each new fan of Fla-Vor-Ice and Otter Pops Fan Pages, $1 will be donated to American Childhood Cancer/Candlelighters Childhood Cancer Foundation! Last year Jel Sert was the first company to promote childhood cancer awareness and this year they've expanded to more products with the gold ribbon.
Be sure to click before April 5th!
Click Otter Pops for a cure!
Click Fla-Vor-Ice for a cure!
Click the wall to become a fan, and $1 will be donated by the company on your behalf. While you're at it, check out the comments left for Jel Sert and leave one of your own!
Be sure to click before April 5th!
Click Otter Pops for a cure!
Click Fla-Vor-Ice for a cure!
Click the wall to become a fan, and $1 will be donated by the company on your behalf. While you're at it, check out the comments left for Jel Sert and leave one of your own!
Monday, March 15, 2010
Saturday, February 27, 2010
Upcoming Events
Announcements for our families:
On Friday, March 19th, from 7 - 9 pm, Life with Cancer will be kicking off their new "Rachel's Teen Scene" room and Teen Activity Program with a fun filled night for all teens with cancer (13-19) or teens affected by cancer featuring a DJ, games, and food catered by Glory Days. Teardrops to Rainbows has decorated a new teen lounge and will be raffling 10, $100 gift certificates to lucky participants. Participants may bring a friend. For more information or to RSVP for your teen, please call Jenny Eckert, LCSW at 703-698-2536, or email jennifer.eckert@inova.org.
DC Candlelighters will co-sponsor the next Pediatric Oncology Parent Night with Life With Cancer and Leukemia & Lymphoma Society, which will be held on March 23rd, from 6 - 8:30 pm and will feature Dr. Maya Lodish, Endocrinologist with NIH, who will speak to parents about issues concerning growth and development, fertility and bone health during and after treatment. A separate children's activity group will be offered at this meeting for kids/sibs ages 5 - 12. Please RSVP to Connie Connor @ constance.connor@inova.org or dccandlelighters@gmail.com.
Life with Cancer will plan to have a Kids/Sibs Support Day on Monday, March 29th, from 10 - 4 pm. Lunch and snack provided. Please register your child or children with Jenny Eckert, LCSW by calling 703-698-2536 or email jennifer.eckert@inova.org.
We hope you can attend!
On Friday, March 19th, from 7 - 9 pm, Life with Cancer will be kicking off their new "Rachel's Teen Scene" room and Teen Activity Program with a fun filled night for all teens with cancer (13-19) or teens affected by cancer featuring a DJ, games, and food catered by Glory Days. Teardrops to Rainbows has decorated a new teen lounge and will be raffling 10, $100 gift certificates to lucky participants. Participants may bring a friend. For more information or to RSVP for your teen, please call Jenny Eckert, LCSW at 703-698-2536, or email jennifer.eckert@inova.org.
DC Candlelighters will co-sponsor the next Pediatric Oncology Parent Night with Life With Cancer and Leukemia & Lymphoma Society, which will be held on March 23rd, from 6 - 8:30 pm and will feature Dr. Maya Lodish, Endocrinologist with NIH, who will speak to parents about issues concerning growth and development, fertility and bone health during and after treatment. A separate children's activity group will be offered at this meeting for kids/sibs ages 5 - 12. Please RSVP to Connie Connor @ constance.connor@inova.org or dccandlelighters@gmail.com.
Life with Cancer will plan to have a Kids/Sibs Support Day on Monday, March 29th, from 10 - 4 pm. Lunch and snack provided. Please register your child or children with Jenny Eckert, LCSW by calling 703-698-2536 or email jennifer.eckert@inova.org.
We hope you can attend!
Tuesday, February 16, 2010
February Parent Dinner & Support
Parents,
We hope you can join us next week! Click on the flyer below for more details:
We hope you can join us next week! Click on the flyer below for more details:
Friday, February 12, 2010
CANCELED - Kids with Cancer and Super Sibling Support Day
Kid and Super Sibling Support Day which was scheduled for Feb 15th has been canceled due to Fairfax County taking back the holiday. With the uncertainty re snow make up days, we are unable to plan Kid/Sib Days until further notice. Stay tuned for future dates....
Thursday, January 14, 2010
Upcoming events - H1N1 Precautions Lifted
The H1N1 flu precautions have been lifted at Inova Fairfax Hospital and Life with Cancer. We are happy to report that the programs including group children's activities are back!
Some of the upcoming events for both Life with Cancer and DC Candlelighters:
(click on each flier for more information) We hope you can join us!
January 19th and every 3rd Tuesday of the month
4:15 - 5:30 pm
Off therapy group for kids 5-12 years old
January 26th Parent Resource Night
6-8:30 pm
Pizza dinner for the whole family
Kids' activity for 5-12 year olds while parents meet separately
February 15th Kid and Sib Day
10am - 4pm for Kids with cancer and their sibs ages 5-12
All of the above will be held at the Life with Cancer Family Center, 8411 Pennell Street, Fairfax, VA 22031
Some of the upcoming events for both Life with Cancer and DC Candlelighters:
(click on each flier for more information) We hope you can join us!
January 19th and every 3rd Tuesday of the month
4:15 - 5:30 pm
Off therapy group for kids 5-12 years old
January 26th Parent Resource Night
6-8:30 pm
Pizza dinner for the whole family
Kids' activity for 5-12 year olds while parents meet separately
February 15th Kid and Sib Day
10am - 4pm for Kids with cancer and their sibs ages 5-12
All of the above will be held at the Life with Cancer Family Center, 8411 Pennell Street, Fairfax, VA 22031
Happy New Year!
DC Candlelighters wants to thank all of our supporters and donors for making 2009 a great year! Your continued support will enable us to add more programs for our families.
Subscribe to:
Posts (Atom)