Tuesday, February 8, 2011

NCCS Upcoming Web Conferences

Beyond the Cure – 2011 Web Conference Series

The National Children's Cancer Society is pleased to offer free web conferences for survivors, parents/guardians and healthcare professionals that address the lifelong impact of a cancer diagnosis and treatment.

You may register for a conference below. Or, click here to view archived web conferences.

2011 General Conference Series
The NCCS also sponsors regular web conferences for caregivers and healthcare professionals. The 2011 series focuses on "Optimizing the Lifelong Health of Childhood Cancer Survivors."

To register for a web conference please click on the appropriate link:

The Endocrine System
Date: Wednesday, February 16, 2011
Time: 1:30-2:30 pm CST
Presenter: Abby Hollander, MD

Transitioning Off Treatment
Date: Tuesday, March 15, 2011
Time: 1:30-2:30 pm CST
Presenter: Wendy Hobbie, CPN, MSN, FAAN

School Issues
Date: Wednesday, April 20, 2011
Time: 1:30-2:30 pm CST
Presenter: Daniel Armstrong, PhD

Parent Night - Awareness & Advocacy Day

Saturday, February 5, 2011

Help Us Win $5,000 toward Our Mission!

DC Candlelighters needs your help! We have an opportunity to win the $5,000 prize that GuideStar USA, Inc., the leading source of nonprofit information, and KIMBIA, a group that empowers nonprofits and other organizations to increase giving, are making available through their Winter 2011 GuideStar-KIMBIA Nonprofit Giveaway. This generous gift would help us accomplish our mission, specifically providing educational, emotional, financial and practical support to families battling childhood cancer. Anyone with firsthand knowledge about us—donors, volunteers, board members, recipients of our services—can write a review about us on GuideStar. Your review will appear in our profile on both GuideStar and GreatNonprofits, GuideStar’s partner that makes it possible to write and post reviews. There is no charge for writing a review, but you are limited to posting only one review for our organization.

To write a review, please click on http://www2.guidestar.org/organizations/26-2254258/candlelighters-childhood-cancer-foundation-dc-metro-area/review.aspx

For more information, see the official rules at http://www2.guidestar.org/rxg/update-nonprofit-report/sweepstakes-official-rules.aspx. The giveaway ends at 11:59 p.m. EDT, February 28, 2011.

THANK YOU!!

Wednesday, February 2, 2011

Children's Cancer Awareness and Advocacy Day

On Tuesday, February 22nd, DC Candlelighters' Parent Night will be an information and planning session for our participation in the 2011 Children's Cancer Advocacy Day. Several of our families have visited Capitol Hill year after year with Curesearch to tell their stories to their legislators. This is your chance to be heard! Join us on Feb. 22nd at Life with Cancer, 8411 Pennell Street, Fairfax, VA. Children's activity and dinner provided. RSVP to DCCandlelighters@gmail.com

See below for details/registration for Children's Cancer Awareness and Advocacy Day.


On March 16-17, 2011
Children’s Cancer Awareness and Advocacy Day
Advocates and Children’s Cancer Organizations Nationwide
will come Together on Capitol Hill to be Heard!

Children's Cancer Awareness and Advocacy Day

This year, more than ever, we need to make certain that Congress continues
to invest in research for pediatric cancers so that every child is guaranteed a cure!

Our legislative agenda will highlight the need for:

1.Increased children’s cancer research funding.
2.Increased incentives to rapidly advance the development of new life saving treatments.
3.Increased support and education for survivors.

Parenting a Chronically Ill Child

This survey is being done by the University of Southern Mississippi.

** A one dollar donation will be made to pediatric cancer research for every COMPLETED survey!! **

To access the survey, click:
Parenting a Chronically Ill Child

The purpose of this research is to gain a better understanding of factors that may influence the stress that parents of children with cancer experience.

Participating individuals will be asked to complete questionnaires related to various ways parents cope with the stress of parenting a chronically ill child. The survey will take an estimated 30 minutes to complete. Participation in this project is completely voluntary.

By investigating the potential factors related to parenting during a child’s active cancer treatment, we can gain information that can be used to increase positive family outcomes. Identifying mothers who are at an increased risk of parental stress and identifying the factors that potentially decrease the risk of stress can lead to better intervention and prevention in the future. In addition, the information obtained from this research can be used to inform future research endeavors. An incentive for participation is a one-dollar donation toward pediatric cancer research for every completed survey.

Capitals Special/Sled Hockey Clinic!

( * Note: please only register your child with a disability as a participant )

Friday, February 11, 2011 from 11:30 AM - 3:00 PM (ET)

Arlington, VA

For details and to register, please visit: http://extremerecesscaps.eventbrite.com/